Tuesday, November 9, 2010

When your life ends, but you are left still breathing and standing

Life as I had known it since 1981 ended for me September 24, 2009. My husband was 49 years and 1 month old. He was no longer able to fight off the cancer. First it had invaded his prostate and lymph nodes, so that by the time it was diagnosed it had metastasized. Surgery no longer provided a chance for a cure. Later the cancer invaded his kidney, and his bones, causing excruciating pain. Morphine became our much appreciated friend. Radiation, chemotherapy, hormone suppression, and experimental trials each had their turn, but in the end they all let us down. Towards the end the cancer had replaced the bones in his vertebrae. They told us prostate cancer was not supposed to spread to the kidneys or the brain, but it did both.

He didn’t understand that he was too weak to stand. I tried to catch him as he struggled to raise from his wheel chair. We pivoted and fell in a slow spiral to the floor. Neither of us had the strength to lift him up again. The EMTs came, and listened to my words of caution: “He has cancer in his arm bones and his thigh bones. There is cancer in his vertebrae. Can you please pick him up without hurting him?" What compassionate experts they were. They slipped a folded sheet beneath him and causing no trauma, they lifted him back into his wheel chair. Later he again forgot that he was too weak to walk. He wanted to get out of the hospital bed. He told me as sweetly as possible, “I know you want me here, but I just need to be free.”

The night Brian left this earth, his Hospice nurse told me that he might not make it through the night. I am so grateful that she told me this. Otherwise I might have missed his passing even though I was sleeping on the sofa right next to his hospital bed.

We called Brian’s parents, sister and brother-in-law and asked if they wanted to be there. They had been there earlier in the day, but came right back over. If there is anything sadder than watching an 85 year old father and 84 year old mother say good-bye to their son, it is watching 24 year old and 22 year old daughters who did not have nearly enough time with their Dad.

Before Brian’s parents, sister, and brother-in-law returned, I crawled up in the hospital bed with Brian. He was laying on his side and I spooned my body against his. I matched my breathing to his breathing and was able to relax for the first time in a long while. Why hadn’t I been doing this during the week he’d been in this hospital bed? I know the answer. I was afraid of damaging the fragile broken skin on his legs so bloated with edema. I was afraid of causing him pain. For that moment though, it felt so right. So right that I wish I could have this much now, even if I could have nothing else of Brian. Lying next to him, feeling his warmth, listening to him breathe was wonderful!

Brian’s parents, his sister and brother-in-law returned. We gathered around Brian’s bed holding his hands and praying. I was thinking that he probably had several more hours, but suddenly his breathing turned to a death rattle and I was sure he was getting ready to go. I knelt on the head of his bed, caressing Brian’s head and face, prayed that God would ease his transition from earth to heaven and thanked Jesus for welcoming Brian. Brian breathed his last and I began to cry, “Oh Brian! I’m going to miss you! I ‘m going to miss you so much!”

It took three hours for the mortuary to get there. We went into the kitchen, because watching Brian become paler and more dead looking was too hard. There was only one man there from the funeral home, so our brother-in-law, Dwain, and our hospice nurse, Linda, helped the mortician place Brian in a body bag. They offered us one last look, but we declined. None of us wanted pictures in our heads of Brian dead. We have so many better pictures of him laughing.



Friday, November 5, 2010

Strange longings

I miss Brian so much! I’m not getting used to him not being here. Yesterday I watched a video of military people surprising their loved ones when they didn’t expect to see them for a long time still. It was very moving and it had me in tears. I wish Brian could do that – just show up and startle me with a big hug. I would never let go of him.

The last few hours before he died I crawled into the hospital bed and cuddled with him. I don't think he was aware in a cognitive sense that I was there, but I think he was in a body memory sense. That sense that it just feels so right to cuddle with the one you've loved so long, you relax, you start to breathe in unison. It was so nice. Now I wonder why I didn't do that all 8 days after he moved out of our bed into a hospital bed.

I know Brian can't just come back to me though. I don’t think people in Heaven have any desire to come back to a screwed up earth. Hanging out with Jesus and a bunch of other people he once knew and loved, and now none of them ever act like jerks or do anything out of selfish motivation, wouldn’t motivate me to come back to earth. Of course if Brian could come back to earth, it would create so much confusion. He wouldn’t be able to unobtrusively pick up where he left off. So no, I want him back so much, but he won’t be coming back. I am totally convinced that he still loves me and is looking forward to seeing me. I won’t still be his wife since there isn’t marriage in heaven, but I do believe we will still be family and I hope that I am still his best friend! He is still my best friend, but I don’t know that I can compare to the friends he is surrounded with now!

I’ve caught myself doing some crazy thinking lately. Brian and I had felt that our family was complete at least since 1996, when our two daughters were 9 and 11. Another baby just didn’t seem like a good idea considering how hard Brian and I were both working at our jobs, and trying to balance that with meeting our daughters' needs. I do believe that was the right decision. As can most parents, I look back and see areas where I wish I’d done more for my daughters, especially times when I wish I had been there for them more in an emotional and spiritual sense.

I couldn’t be more delighted with the young women my daughters have grown up to be. They are kind and caring. They have integrity. They each know that they are unique and special and that is something to be celebrated!

So what is this strange thing going on with me during the last month or so when I find myself irrationally wishing I could have another baby? Not just any baby. I want to have another baby of Brian’s. I know it is totally selfish and impractical! It isn’t something that is even possible to do because there is no frozen sperm, but even if it was possible it would be cost prohibitive, because I couldn’t even use my own 50 year old eggs, without a high risk of problems.

It’s just that selfishly, I still want to be part of a family everyday. I want to hang onto anything of Brian that I can grab. I don’t want to be a widow in an empty house. This isn’t what I planned for age 50. I planned to be enjoying life with Brian, playing at whatever was fun and meaningful for us. We had so many hobbies. We would never have been bored.

If I can’t have Brian, I’d like to raise another one of his children. Being Brian’s wife, and Brianna and Emily’s mom has been the best thing in my life, yet I know I can’t do anything to make myself a Mom another time.

I couldn’t have imagined 5 years ago that when I reached 50, I’d be sad because I wanted another baby. If someone had told me I'd feel this way, I would have said they were crazy. I don’t know if it is grief and loss that has made me feel this way, or if this is really just a hormonal trick my body is playing on me, before I reach menopause?

Speaking of menopause, how did that work that my husband, who is younger than I am, died from prostate cancer before I reached menopause? This was not part of my life plan, although I know that though God didn’t bring this tragedy into our lives, He also was not surprised by it. I wish I could see what God’s plan from here on is, but none of us get that opportunity. I guess that is why it is called trusting in Him.

God I’m asking for something really big from you. I want you to bring something new into my life that is as wonderful and meaningful and loving as being a new mom. That is what I feel like I need. I’m waiting for you to surprise me with how you meet that need!

Friday, October 1, 2010

October 1st

I met Brian on October 1, 1978. That was 32 years ago today. It is true that time flies when you are having fun!

Thursday, September 30, 2010

Kansas lyrics to the songs Brian put in his slide show

The Wall

by Kansas

I'm woven in a fantasy, I can't believe the things I see
The path that I have chosen now has led me to a wall
And with each passing day I feel a little more like something dear was lost
It rises now before me, a dark and silent barrier between,

All I am, and all that I would ever want be
It's just a travesty, towering, marking off the boundaries my spirit would erase

To pass beyond is what I seek, I fear that I may be too weak
And those are few who've seen it through to glimpse the other side,
The promised land is waiting like a maiden that is soon to be a bride
The moment is a masterpiece, the weight of indecision's in the air
It's standing there, the symbol and the sum of all that's me
It's just a travesty, towering, blocking out the light and blinding me
I want to see

Gold and diamonds cast a spell, it's not for me I know it well
The treasures that I seek are waiting on the other side
There's more that I can measure in the treasure of the love that I can find
And though it's always been with me, I must tear down the Wall and let it be
All I am, and all that I was ever meant to be, in harmony
Shining true and smiling back at all who wait to cross
There is no loss

Carry On Wayward Son

by Kansas

Carry on my wayward son,
For there'll be peace when you are done
Lay your weary head to rest
Now don't you cry no more

Once I rose above the noise and confusion
Just to get a glimpse beyond the illusion
I was soaring ever higher, but I flew too high
Though my eyes could see I still was a blind man
Though my mind could think I still was a mad man
I hear the voices when I'm dreamin',
I can hear them say

Carry on my wayward son,
For there'll be peace when you are done
Lay your weary head to rest
Now don't you cry no more

Masquerading as a man with a reason
My charade is the event of the season
And if I claim to be a wise man

It surely means that I don't know
On a stormy sea of moving emotion
Tossed about I'm like a ship on the ocean
I set a course for winds of fortune, but
I hear the voices say

Carry on my wayward son,
For there'll be peace when you are done
Lay your weary head to rest
Now don't you cry no more

Carry on, you will always remember
Carry on, nothing equals the splendor
Now your life's no longer empty
Surely heaven waits for you

Carry on my wayward son,
For there'll be peace when you are done
Lay your weary head to rest
Now don't you cry no more

Lyrics to On The Other Side

by Kansas

The empty page before me now, the pen is in my hand
The words don't come so easy but I'm trying
I'm searching for a melody or some forgotten line
They can slip away from us so quickly
Don't be unkind. I'm not complaining
I only feel it needs explaining


And though I've said it all before I'll say it once again

Everyone needs something to believe in
So turn around, turn around, it's on the other side
Feel the sound, feel the sound

It's coming from deep inside
It will fill you with emotion, if you let it be your guide

So turn around; turn around, it's on the other side

I'm waiting for the day to end another to begin
Somehow I've forgotten what it stood for
I look into your face and see the searching in your eyes
I will be your servant till the end
The music plays, and for a moment I feel
That all these days are so fulfilling


And though I've said it all before I'll say it once again

Everyone needs something to believe in
So turn around, turn around, it's on the other side
Feel the sound, feel the sound

It's coming from deep inside
It will fill you with emotion, if you let it be your guide

So turn around; turn around, it's on the other side


Desperation shows its ugly face in many ways
No one can escape the times we live in
The answers are so simple and we all know where to look
But it's easier to just avoid the question
And if I seem too inconclusive
It's just because it's so elusive

And though I've said it all before I'll say it once again

Everyone needs something to believe in
So turn around, turn around, it's on the other side
Feel the sound, feel the sound

It's coming from deep inside
It will fill you with emotion, if you let it be your guide

So turn around; turn around, it's on the other side

Friday, September 24, 2010

This Is What Brian Wanted You All To Know

Brian hated dying so young. He felt like there were things he still wanted and needed to do. He had friends he loved that don’t know Christ and he was praying for them and waiting for the time the Spirit would prompt him to share. There were people he was concerned for that he hadn’t had the opportunity to share with, or at least not as much as he wanted to share. Brian and I both prayed that God would transform Brian's death from a curse to a blessing by using it to reach people Brian loved who might never have come to a relationship with God if Brian had been granted a normal life span. That is why Brian prepared a slide show for his own memorial months before he died. Many of you received a DVD of it when you attended Brian's Memorial Service a year ago. (To see that presentation again, click on the link under the blog title.) Some of you may have not really understood how badly Brian wanted you to consider the message. For more than a month I have been prayerfully composing what I feel Brian wanted each one of you to know. If I have notified you of this blog, it means that Brian loved you and wanted to share this with you. Even if it makes you uncomfortable, please read it and ask God to show you the truth.

This is What Brian Believed

God is pure goodness, love, and light! God loves us and wants us to be in relationship with Him, but the wrong things we do separate us from Him. Separation from God is painful and would leave us lost, isolated, and spiritually dead forever, if God had not provided a way for us to be rescued. God loves us so much that He sent His son, Jesus, to die on the cross and pay the price for every single wrong thing we have ever done or thought. Because Jesus is one with God, death could not hold Him. He rose from the grave and rules in Heaven with God. God will not force any of us to be in relationship with Him, but he freely offers eternal life in Heaven to each one of us who believes in Jesus. The only thing you have to do is accept His forgiveness and His offer of an eternal relationship with Him.

Brian’s one wish as he faced death was that he would be reunited with every person he knew in eternity in Heaven. He created his own memorial presentation so that he could share this with as many people as he could.

While growing up Brian was told that people needed to follow many rules in order to please God. Brian felt frustrated and believed that nothing he did was good enough to earn God’s acceptance. He spent his childhood not understanding that he didn’t need to do a single thing to earn God’s love and acceptance.

In the slide show Brian prepared, he used songs written by Kerry Livgren, of Kansas, chronicling his own search for God. Brian identified strongly with the lyrics and loved the music. He chose “The Wall” to accompany the pictures of that early part of his life. As the lyrics in the song describe, Brian felt isolated, lost, and unloved.

When Brian was nineteen years old, he spent some time studying the Bible and realized that if Jesus returned for him, he wouldn’t be ready. He also came to understand that he didn’t have to do anything to earn God’s forgiveness, other than being willing to receive it. Although Brian now had a relationship with God, he was wary of church people. He feared not meeting their expectations and being judged negatively by them.

Brian chose the lyrics to “Carry On My Wayward Son” to accompany the pictures of the next part of his life. No longer living under the tight control that felt so oppressive to him as a child, he now began to discover who God had created him to be. He became a husband, and father, and a successful computer programmer. He loved to laugh, and make others laugh. One of the things I miss most about him is that he made me laugh every day! He discovered he had a talent and enjoyment in performing musical theatre. He treasured time spent delighting in God’s creation. He especially loved spending time in the mountains and at the ocean.

Approaching mid-life Brian finally found a church family where he knew he was accepted and loved. Through this experience God’s love and acceptance became more real and deeply felt by Brian than he had ever experienced before. This led to an increased sense of peace and love for others.

A short time later Brian was diagnosed with Stage IV cancer. He uses the Kansas song “On the Other Side” for this part of his life. He chose the words he wrote carefully, not wanting anyone to feel negatively judged by his message, but wanting every person who saw his slide show to understand the good news that we can experience God’s love and can know for sure that we will spend eternity with Him in Heaven, if we only choose to believe in Jesus. The thing Brian did not want was for any person who saw his slide show to watch it and still choose eternal separation from God.


My "Anniversary" Letter to Brian

Brian,

I lost you a year ago today. I don’t know how that much time can have passed so quickly. I haven’t gotten used to you being gone. A few days ago, as I often do, I dreamed you were with me. You felt you should let our friends and family know that you aren’t really dead. In the dream we were both kind of mystified because the cancer seemed to have disappeared or gone away. We had both known you were going to die, but then you didn’t. When I thought about it though, I told you, “Don’t tell them that, because sometimes you are really dead.”

Dreams are strange, but I think I have these dreams because I am grappling with two truths. You are gone from this life, and you aren’t going to return to me here. Yet you are in Heaven and more alive than you ever were before! The cancer is gone, and you are not really dead. You will not return to me, but I will some day come to you.

I love you so much, Brian! Thank you for the life you shared with me. I so look forward to the eternity we will share together.

All my love,

Laurie